16 Oct 2026
Booklets help relatives care for patients at home
Under resolution PQ-239, the Center has prepared booklets that teach relatives how to care for patients at home.
Palliative care · A companion for patients and their relatives
Caring for someone with a serious illness, at home
Palliative care eases pain and distress and improves quality of life. It can begin early, alongside treatment — it does not mean giving up. This ten-part companion gives families gentle, practical guidance: what to expect, how to keep someone comfortable, and when to ask for help. Each part is a short four-page booklet you can read and print.
The ten-part guide
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What palliative care is
A clear guide for patient and family
Palliative care improves quality of life — it cares for body, mind and spirit, can run alongside treatment, and is for adults and children with any serious illness, not only the last days.
Download · 4-page PDFIn this booklet
- Care can start early
- What matters to you
- Common questions
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How to get palliative care
Asking for help and planning care
The first step is talking to your family or treating doctor: bring your records and medicines, ask plainly for a palliative-care assessment and referral, and leave with a written plan and contact numbers.
Download · 4-page PDFIn this booklet
- Prepare for the visit
- Who helps, and how
- Before going home
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Easing pain
Practical advice for patient and family
Describe pain clearly — where it is, what kind, and from 0 to 10; follow the written medicine plan and never double a dose; morphine relieves severe pain and does not mean the end is near.
Download · 4-page PDFIn this booklet
- How to describe pain
- Using medicines safely
- Watch and ask for help
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Everyday care at home
Keeping comfort and safety
Ask consent and let the person do what they can; make a safe, reachable space, wash your hands and give gentle hygiene, and watch each day for changes in pain, breathing, skin and appetite.
Download · 4-page PDFIn this booklet
- Prepare the room and yourself
- Body and mouth hygiene
- Daily watching
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Preventing bedsores
Skin care and relieving pressure
A bedsore is damage caused by long pressure; check pressure points daily, change position following the nurse’s plan, keep the skin clean and dry, and report lasting redness early — before the skin breaks.
Download · 4-page PDFIn this booklet
- Check the skin daily
- Relieve pressure
- Protect the skin
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When eating and swallowing get hard
Offering food and drink safely
Never force food; offer small amounts while the person is alert and sitting up, watch for coughing or a wet voice that signal trouble swallowing, and remember that in the last days the need for food and drink naturally falls.
Download · 4-page PDFIn this booklet
- Offer food gently
- Watch swallowing safety
- As the illness advances
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Help with distressing symptoms
Breathlessness, nausea and more
For breathlessness, sit the person upright and stay calm; for nausea, reduce strong smells; keep track of the bowels and any sudden confusion; and call 103 for sudden severe breathlessness, a bluish colour, fainting or heavy bleeding.
Download · 4-page PDFIn this booklet
- Breathlessness and nausea
- Constipation and agitation
- When to call emergency care
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Palliative care for children
Supporting the child and the whole family
Care aims to ease the child’s pain and support play, learning and family life; speak in words the child understands, never give an adult dose, and give brothers and sisters explanation and time too.
Download · 4-page PDFIn this booklet
- Understand the child’s needs
- Comfort and play at home
- Help for the whole family
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Supporting your loved one — and yourself
Talking, resting and asking for help
You do not always need the right words — listening and being present are enough; share the care as clear tasks, keep one shared medicine log, and look after your own sleep, meals and feelings.
Download · 4-page PDFIn this booklet
- How to start the conversation
- Organise care together
- When extra help is needed
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Support in the last days
Comfort, closeness and support for the family
Changes differ for everyone — more sleep, less appetite, altered breathing; focus on comfort and closeness, agree a plan for the night and for afterwards, and know that grief takes many forms and that help is there.
Download · 4-page PDFIn this booklet
- What changes may happen
- Keeping comfort
- Next steps for the family
You are not meant to do this alone
A note
These booklets support, but do not replace, your personal treatment plan. Talk through your questions with your doctor or nurse. In an emergency or sudden change, call 103.
The person giving care needs care too.
Ask your family doctor or treating doctor to assess your need for palliative care and refer you to an available service. Services differ by region. If daily life becomes too hard, speak to a doctor or psychologist — and in an emergency, call 103.
Prepared under resolution PQ-239 (24 June 2026) and grounded in guidance from WHO, NHS and Marie Curie.
Sources: WHO · NHS · Marie Curie · Lex.uz